Publications and Presentations

Publications

O’Brien KK, McDuff K, Chattu VK, Churchill K, Colantonio A, Davenport TE, Gross DP, Jaglal S, Kho M, Leighton J, Premnazeer M, Rendely A, Scali O, Skoretz S, Wasilewski M, Cameron JI, Rehabilitation Science Research Network for COVID (2024). “A Framework of Research Priorities in COVID Rehabilitation from the Rehabilitation Science Research Network for COVID: An International Consultation involving Multi-Methods. O’Brien KK, McDuff K, Chattu VK, Churchill K, Colantonio A, Davenport TE, Gross DP, Jaglal S, Kho M, Leighton J, Premnazeer M, Rendely A, Scali O, Skoretz S, Wasilewski M, Cameron JI, Rehabilitation Science Research Network for COVID (2024). Disability and Rehabilitation. 1-10.

Conferences and Presentations:

Patient partners and long COVID stakeholders a part of this work were passionate about peer support practices that brought together the community of people living with, or caring for someone with, long COVID at an National and International level.

Introducing the ‘Long COVID Education and Awareness Hub’: Addressing psychosocial needs across the continuum of care (Poster and oral presentation). GTA Best Practices Day, Toronto, Ontario. {Authors: Leighton, J., Reis, L., Vijayakumar, A. Wasilewski, M., & Simpson, R. Date: May 3, 2024.

Canadian care providers’ perspectives on long COVID rehabilitation provisions (Oral presentation). Canadian Association of Occupational Therapy (CAOT) Conference, Halifax, Nova Scotia. Authors: Heldmann, I., van de Ven, K., Leighton, J., Reis, L., Vijayakumar, A., Wasilewski, M., & Simpson, R. Date: May 1-3, 2024.

The Long COVID Education and Awareness Hub: A public-facing resource (Poster presentation). ICIC24. Belfast, Ireland. (Authors: Leighton, J., Reis, L., Vijayakumar, A. Wasilewski, M., & Simpson, R. Date: April 22-24, 2024).

The Long COVID Education and Awareness Hub: A public-facing resource webpage. Rehabilitation Science Institute, Long COVID Forum. Toronto, Ontario. (Authors: Leighton, J., Reis, L., Vijayakumar, A. Wasilewski, M., & Simpson, R. Date: April 19, 2024).

Introducing the ‘Long COVID Education and Awareness Hub:’ addressing psychosocial needs across the continuum of care. Rehabilitation Science Institute Rounds, Toronto, ON. (Author: Leighton, J. Date: November 29, 2023).

Introducing the ‘Long COVID Education and Awareness Hub:’ addressing psychosocial needs across the continuum of care. Evaluative Clinical Studies Sunnybrook Rounds, Toronto, ON. (Author: Leighton, J. Date: November 9, 2023).

Showcasing a ‘Long-COVID (LC) Workforce Toolkit’ for Health and Social Care Providers: Providing resources, supports, and a mapping of networks that support rehabilitative efforts (oral presentation). The 100th Annual Conference of the American Congress in Rehabilitation Medicine (ACRM), Progress in Rehabilitation Research, Atlanta, GA, USA. (Authors: Leighton, J. Reis, L., Wasilewski, M., & Simpson, R. Date: October 30th to November 2nd, 2023).

Living with Long COVID (LC): A Day in the life of people with LC and their caregivers (Video story-sharing session). Pride in Patient Engagement in Research (PiPER) Conference, Toronto, ON. (Authors: Leighton, J., Reis, L., Vijayakumar, A., Wasilewski, M., & Simpson, R. Date: October 5, 2023).

Biographical disruptions: Sharing the lived experiences of people with long COVID and caregivers. (Poster presentation). 1st Canadian Symposium on Long COVID, Montreal, Quebec. (Authors: Leighton, J., Reis, L., Wasilewski, M., & Simpson, R. Date: September 20th-21st, 2023).

Co-Designing a Long COVID Rehabilitation Hub: Addressing psychosocial needs across the continuum of care (poster presentation). 1st Canadian Symposium on Long COVID, Montreal, QC. (Authors: Leighton, J., Reis, L., Wasilewski, M., & Simpson, R. Date: September 20th-21st, 2023).

Showcasing a ‘Long-COVID (LC) Workforce Toolkit’ for Health and Social Care Providers: Providing resources, supports, and a mapping of networks that support rehabilitative efforts (oral presentation). The 100th Annual Conference of the American Congress in Rehabilitation Medicine (ACRM), Progress in Rehabilitation Research, Atlanta, GA, USA., (Authors: Leighton, J., Reis, L., Vijayakumar, A. Wasilewski, M., & Simpson, R. Date: October 30 – November 2, 2023)

Co-designing and Educational Resource for Long COVID. Poster presented at the Sunnybrook Research Institute Summer Student Research Program Research Day, Toronto, ON. (English M, Sanchez K, Reis L, Leighton J, Vijayakumar A, Simpson R, Wasilewski MB. Date: August 17, 2023).

Co-designing an Environmental Scan of Long COVID Peer Support Groups across Canada (poster presentation). Sunnybrook Research Institute Summer Student Research Program Research Day, Toronto, ON. (Sanchez K., English M, Reis L, Leighton J, Vijayakumar A, Simpson R, Wasilewski MB. Date: August 17, 2023).

Identifying Needed Supports for Health Care Providers Working with People with Long COVID: A qualitative descriptive approach.Wasilewski, M., & Simpson, R. Date: May 8, 2023). International Conference on Aging, Innovation, and Rehabilitation (ICAIR) 2023, University Health Network (UHN), Toronto Ontario. (Authors: Leighton, J., Reis, L., 

Co-creating a ‘Long-COVID (LC) Workforce Toolkit’ for Health and Social Care Providers: Identifying gaps, barriers, and needs that support rehabilitative efforts. Toronto, ON. GTA Rehab Network: Best Practices Day 2023. (Authors: Leighton, J., Reis, L., Wasilewski, M., & Simpson, R. Date: May 5, 2023).

Co-creating a ‘Long-COVID (LC) Workforce Toolkit’ for Health and Social Care Providers: Identifying gaps, barriers, and needs that support rehabilitative efforts. Toronto, ON. Sunnybrook Research Expo 2023. (Authors: Leighton, J., Reis, L., Wasilewski, M., & Simpson, R. Date: March 23, 2023).

Presentations

Topics in Clinical Care (Including Mental Health Supports) and Rehabilitation Workshop. 2nd Canadian Symposium on Long COVID. Invited Speaker: Wasilewski, MB. Edmonton, AB, Canada. (October 3-4, 2024)

Introducing the ‘Long COVID Education and Awareness Hub’: Addressing psychosocial needs across the continuum of care. 2nd Canadian Symposium on Long COVID. Edmonton, AB, Canada. (Authors: Wasilewski, MB; Leighton, J; Reis, L, Vijayakumar, A, Sheppard, C.; Nelson, M.; Hitzig, S.; Robinson, L.; Steinberg, R.; Nguyen, M.; Bayley, M.; Chan, A.; Daneman, N.; Ho, C.; Levy, C.; O’Connell, P.; Goulding, S.; Simpson, R. Date: October 3-4, 2024).

 “I’m not living my normal everyday life like I was before:” Canadians’ Experiences with Biographical Disruptions due to Long COVID. 2nd Canadian Symposium on Long COVID. Edmonton, AB, Canada. (Co-Authors: Leighton, J; Reis, L, Vijayakumar, A, Sheppard, C.; Nelson, M.; Hitzig, S.; Robinson, L.; Steinberg, R.; Nguyen, M.; Bayley, M.; Chan, A.; Daneman, N.; Ho, C.; Levy, C.; O’Connell, P.; Goulding, S.; Simpson, R. Date: October 3-4, 2024).

Socioeconomic Aid

Assistance connecting to financial, housing, food, transportation, or community support resources.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Linkage (H, E, L)

Employment/Insurance Aid

Support with workplace accommodations, return-to-work planning, disability forms, or insurance issues.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Education, Advocacy, Linkage (E, A, L)

Exacerbating Symptoms

Reach out for guidance on a symptom that is becoming worse, more frequent, or more disruptive.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Recurrent Symptoms

Reach out for guidance on a symptom that had improved or resolved but has returned or is ongoing.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

New Symptoms

Contact to discuss and document a new symptom that has developed since the last contact.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Routine Visit

Scheduled follow-up to review progress, ongoing symptoms, care needs, and next steps.

Frequency

Every 3-4 months

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Intake

First visit to assess patient needs, symptoms, goals, and appropriate navigation supports.

Frequency

Once

Length

30–60 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)