Education

What is the goal of our EDUCATION pillar?

Our aim is to provide knowledge and resources designed to help PWLC, LC Caregivers, HSCPs and employers define, recognize and help manage and accommodate LC symptoms.

Education is an important element to address in order to provide credible information on the psychosocial impacts of LC and assist in navigating these challenges.

See our Patient and Family Education Resource 

People with Long COVID Resources Living with Long COVID: Education for Patients, Families & Caregivers

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People with Long COVID Resource Page

 

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Caregiver Resource Page

Check Out Our LC Infographics on the Psychosocial Impacts and Rehab Experiences of Living with LC

Psychosocial Impacts Infographic 

Rehab Experiences Infographic

Are you interested in participating in this project? Connect with us

WHAT MORE CAN BE DONE?

Patient partners and long COVID stakeholders are part of this work identified a number of system-level issues and access barriers that call for health and social care reform processes. The issues and barriers named by long COVID stakeholders call for long COVID care to be better integrated across the continuum of care.

Socioeconomic Aid

Assistance connecting to financial, housing, food, transportation, or community support resources.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Linkage (H, E, L)

Employment/Insurance Aid

Support with workplace accommodations, return-to-work planning, disability forms, or insurance issues.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Education, Advocacy, Linkage (E, A, L)

Exacerbating Symptoms

Reach out for guidance on a symptom that is becoming worse, more frequent, or more disruptive.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Recurrent Symptoms

Reach out for guidance on a symptom that had improved or resolved but has returned or is ongoing.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

New Symptoms

Contact to discuss and document a new symptom that has developed since the last contact.

Frequency

As needed

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Routine Visit

Scheduled follow-up to review progress, ongoing symptoms, care needs, and next steps.

Frequency

Every 3-4 months

Length

20-30 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)

Intake

First visit to assess patient needs, symptoms, goals, and appropriate navigation supports.

Frequency

Once

Length

30–60 min

HEAL-Kit Tools

Health Care Access, Education, Advocacy, Linkage (H, E, A, L)